Cleft lip and palate care in the United Kingdom--the Clinical Standards Advisory Group (CSAG) Study. Part 1: background and methodology

Cleft Palate Craniofac J. 2001 Jan;38(1):20-3. doi: 10.1597/1545-1569_2001_038_0020_clapci_2.0.co_2.

Abstract

Objective: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study.

Design: Descriptive overview to introduce this series of papers.

Setting: Fifty National Health Service cleft teams.

Patients/participants: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents.

Main outcome measures: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction.

Conclusions: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Attitude of Health Personnel
  • Bone Transplantation / physiology
  • Cephalometry
  • Child
  • Child, Preschool
  • Cleft Lip / diagnostic imaging
  • Cleft Lip / physiopathology
  • Cleft Lip / surgery
  • Cleft Lip / therapy*
  • Cleft Palate / diagnostic imaging
  • Cleft Palate / physiopathology
  • Cleft Palate / surgery
  • Cleft Palate / therapy*
  • Cohort Studies
  • Cross-Sectional Studies
  • Dental Caries / classification
  • Esthetics
  • Female
  • Humans
  • Male
  • Maxillofacial Development / physiology
  • Models, Dental
  • Oral Fistula / classification
  • Outcome Assessment, Health Care*
  • Patient Satisfaction
  • Photography
  • Quality Assurance, Health Care / methods
  • Radiography
  • Retrospective Studies
  • Speech / physiology
  • Treatment Outcome
  • United Kingdom