A proposal for developing a large patient population cohort for longterm safety monitoring in rheumatoid arthritis. OMERACT Drug Safety Working Party

J Rheumatol. 2001 May;28(5):1170-3.

Abstract

This paper proposes the creation of an objectively acquired reference database to more accurately characterize the incidence and longterm risk of relatively infrequent, but serious, adverse events. Such a database would be maintained longitudinally to provide for ongoing comparison with new rheumatologic drug safety databases collecting the occurrences and treatments of rare events. We propose the establishment of product-specific registries to prospectively follow a cohort of patients with rheumatoid arthritis (RA) who receive newly approved therapies. In addition, a database is required of a much larger cohort of RA patients treated with multiple second line agents of sufficient size to enable case-controlled determinations of the relative incidence of rare but serious events in the treated (registry) versus the larger disease population. The number of patients necessary for agent-specific registries and a larger patient population adequate to supply a matched case-control cohort will depend upon estimates of the detectability of an increased incidence over background. We suggest a system to carry out this proposal that will involve an umbrella organization, responsible for establishment of this large patient cohort, envisioned to be drawn from around the world.

Publication types

  • Review

MeSH terms

  • Adverse Drug Reaction Reporting Systems / organization & administration*
  • Antirheumatic Agents / adverse effects*
  • Antirheumatic Agents / toxicity*
  • Arthritis, Rheumatoid / drug therapy*
  • Clinical Trials as Topic / standards
  • Cohort Studies
  • Humans
  • Registries*

Substances

  • Antirheumatic Agents