Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content

J Adolesc Health. 2004 Jan;34(1):37-45. doi: 10.1016/s1054-139x(03)00249-0.

Abstract

Purpose: To determine the extent of differences and similarities in content between heath-related quality of life (HRQOL) instruments for children and adolescents.

Methods: A descriptive and explanatory qualitative approach was carried out. Instruments specifically designed for use with children or adolescents were included. To assure the validity of the findings a triangulation of the analysis and "member checking" were performed.

Results: Ten questionnaires were analyzed. All of them included items referring to physical, psychological, and social aspects of health. A relatively low number of categories explained the content of the questionnaires.

Conclusions: A reasonably coherent notion of HRQOL underlies instruments available for children and adolescents. HRQOL measurement in young people is still in its developmental step.

Publication types

  • Evaluation Study
  • Research Support, Non-U.S. Gov't
  • Review

MeSH terms

  • Adolescent
  • Attitude to Health*
  • Child
  • Health Status*
  • Humans
  • Psychology, Adolescent
  • Psychology, Child
  • Psychometrics / instrumentation*
  • Quality of Life*
  • Sickness Impact Profile
  • Surveys and Questionnaires / standards*