Adult onset Niemann-Pick disease type C presenting with dementia and absent organomegaly

Clin Neuropathol. 1992 Nov-Dec;11(6):293-7.

Abstract

A 39-year-old female presented to the Bryan Memory Disorders Clinic at Duke University with a 7-year history of an atypical progressive dementia, mildly impaired vertical gaze, dysarthria and mild ataxia. There was no evidence of organomegaly by clinical examination or by radionuclide liver/spleen scan. Brain biopsy disclosed a neuronal storage disorder characterized by ballooned neurons filled with oligo-lamellar cytosomes and lipid droplets. Cultured skin fibroblasts had diminished sphingomyelinase activity and impaired cholesterol esterification, although peripheral leukocyte sphingomyelinase activity was normal. Two years after biopsy, follow-up examination revealed marked progression of vertical gaze paralysis and ataxia. This case expands the clinical spectrum of Niemann-Pick disease type C by presenting in adulthood with subtle neurologic abnormalities; no visceromegaly and profound dementia.

Publication types

  • Case Reports
  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adult
  • Biopsy
  • Brain / pathology*
  • Dementia / pathology*
  • Diagnosis, Differential
  • Female
  • Fibroblasts / pathology
  • Hepatomegaly / pathology
  • Humans
  • Lipid Metabolism
  • Microscopy, Electron
  • Neurons / pathology
  • Neuropsychological Tests
  • Niemann-Pick Diseases / pathology*
  • Skin / pathology
  • Sphingomyelin Phosphodiesterase / deficiency
  • Splenomegaly / pathology
  • Temporal Lobe / pathology

Substances

  • Sphingomyelin Phosphodiesterase