Uncovering the limits of patient-centeredness: implementing a self-management trial for chronic illness

Qual Health Res. 2005 Feb;15(2):224-39. doi: 10.1177/1049732304272048.

Abstract

Research evaluating self-management of chronic conditions points to the effectiveness of interventions' changing the health behavior of individuals. However, we know little about how self-management is negotiated within health services. The authors designed a qualitative investigation to illuminate the quantitative findings of a randomized controlled trial (RCT) of a self-management program for people with inflammatory bowel disease. They conducted in-depth interviews with physicians and patients, and qualitative analysis illuminated the nature of doctor-patient encounters and possible reasons for lack of change in patient satisfaction with the consultation. The findings suggest that factors inhibiting effective patient-centered consultations include failure of physicians to incorporate expressed need relevant to people's self-management activities fully, interpretation of self-management as compliance with medical instructions, and the organization of outpatients' clinics. Giving attention to these barriers might maximize the opportunities for patient self-management of chronic illness based on a therapeutic alliance with health care professionals.

Publication types

  • Clinical Trial
  • Multicenter Study
  • Randomized Controlled Trial

MeSH terms

  • Adult
  • Chronic Disease / psychology
  • Female
  • Health Behavior*
  • Humans
  • Inflammatory Bowel Diseases / psychology
  • Inflammatory Bowel Diseases / therapy*
  • Interviews as Topic
  • Male
  • Middle Aged
  • Patient Education as Topic
  • Patient-Centered Care*
  • Professional-Patient Relations
  • Qualitative Research
  • Self Care*
  • Social Support