Multisite study of infants with single-suture craniosynostosis: preliminary report of presurgery development

Cleft Palate Craniofac J. 2005 Jul;42(4):377-84. doi: 10.1597/04-044.1.

Abstract

Objective: To evaluate the cognitive and language development of untreated infants with a single suture craniosynostosis at time of diagnosis.

Design and participants: The study presents time 1 assessments on the first 100 infants with a single suture craniosynostosis (sagittal, metopic, unilateral coronal, and lambdoid) referred to the Infant Learning Project, a prospective, multisite, longitudinal study evaluating neurocognitive development.

Main outcome measures: Infants were assessed with the mental (Mental Development Index [MDI]) and motor scales (Psychomotor Developmental Index [PDI]) of the Bayley Scales of Infant Development and the Preschool Language Scale receptive (PLS-AC) and expressive (PLS-EC) language scales. Mothers completed the Parenting Stress Inventory, a brief measure of intelligence (maternal IQ [MAT-IQ]), and provided information regarding family socioeconomic status (SES).

Results: As a group, infants scored significantly lower than the normative data on the MDI (91.9), PDI (83.5), PLS-AC (90.4), and PLS-EC (95.8), and the distribution of scores differed significantly from the expected distribution. MAT-IQ and SES were significantly correlated (.47, p < .01) with mothers of higher IQ coming from higher SES groups. Both MAT-IQ and SES were significantly negatively correlated with life stress events; however, neither MAT-IQ nor SES was correlated with any of the infant development scores.

Conclusions: There may be a greater developmental risk for infants with a single suture craniosynostosis than previously believed. However, control group data will be necessary to confirm findings.

Publication types

  • Multicenter Study
  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Child, Preschool
  • Cognition
  • Craniosynostoses / complications*
  • Craniosynostoses / psychology*
  • Developmental Disabilities / diagnosis*
  • Developmental Disabilities / etiology*
  • Female
  • Humans
  • Infant
  • Intelligence
  • Language Development
  • Male
  • Neuropsychological Tests / statistics & numerical data
  • Parenting / psychology
  • Prospective Studies
  • Psychomotor Performance
  • Stress, Psychological / diagnosis