Abstract
We describe a patient with Duchenne muscular dystrophy (DMD) who additionally suffered from intractable seizures, severe mental retardation, and a marked macroglossia. He also had endocrinologic abnormalities consisting of growth hormone deficiency, delayed puberty, and adrenal hypoplasia. We detected a duplication of DMD exon 18 and flanking introns that caused a frame-shift and was not removed by corrective splicing. A coincident mutation in the FKRP gene was excluded by direct sequencing. Complex DNA rearrangements, deletions, and duplications >100 kb were excluded through microarray-comparative genomic hybridization (CGH), although we were not able to exclude a second coincident mutation with certainty. In conclusion, we present a case of DMD that conflicts with current understanding of genotype-phenotype relations and discuss putative pathogenetic mechanisms for this uncommon phenotype.
MeSH terms
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Adrenal Insufficiency / genetics
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Adrenal Insufficiency / metabolism
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Adrenal Insufficiency / physiopathology
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Adult
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DNA Mutational Analysis
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Dystrophin / genetics*
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Endocrine System Diseases / complications
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Endocrine System Diseases / genetics*
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Endocrine System Diseases / physiopathology
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Epilepsy / complications
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Epilepsy / genetics*
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Epilepsy / physiopathology
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Exons / genetics
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Frameshift Mutation / genetics
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Gene Duplication*
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Genetic Markers
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Genotype
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Growth Hormone / deficiency
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Humans
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Intellectual Disability / genetics
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Intellectual Disability / metabolism
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Intellectual Disability / physiopathology
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Macroglossia / complications
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Macroglossia / genetics*
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Macroglossia / physiopathology
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Male
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Muscular Dystrophy, Duchenne / complications
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Muscular Dystrophy, Duchenne / genetics*
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Muscular Dystrophy, Duchenne / physiopathology
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Pentosyltransferases
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Phenotype
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Pituitary Diseases / genetics
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Pituitary Diseases / metabolism
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Pituitary Diseases / physiopathology
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Proteins / genetics
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Puberty, Delayed / genetics
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Puberty, Delayed / metabolism
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Puberty, Delayed / physiopathology
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Syndrome
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Tandem Repeat Sequences / genetics
Substances
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Dystrophin
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Genetic Markers
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Proteins
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Growth Hormone
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FKRP protein, human
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Pentosyltransferases