A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers

Brain Inj. 2007 Oct;21(11):1119-30. doi: 10.1080/02699050701651678.

Abstract

Primary objective: To explore the transition experiences from hospital to home of a purposive sample of individuals with acquired brain injury (ABI).

Research design: Phenomenological, qualitative design.

Methods and procedures: Semi-structured interviews were conducted with 13 individuals with ABI (mean time since discharge = 15.2 months) and 11 family caregivers. Each interview was recorded, transcribed verbatim and then inductively analyzed.

Results: Through the inductive analysis process, a summary coding framework was developed that included that following eight main categories: the hospital experience; the transition process; the role of family caregivers; post-discharge services; friendship networks and community involvement; meaningful activities and time management; physical and psychological wellbeing; and barriers and facilitators.

Conclusions: The results of the study provide valuable insights into the lived experiences of participants and provide evidence to support the existence of a distinct transition phase within the ABI rehabilitation continuum; additional to and closely associated with the acute, post-acute and community integration phases.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Attitude to Health*
  • Brain Injuries / nursing
  • Brain Injuries / psychology
  • Brain Injuries / rehabilitation*
  • Caregivers / psychology*
  • Continuity of Patient Care / organization & administration*
  • Family Health
  • Female
  • Humans
  • Male
  • Mental Disorders / etiology
  • Middle Aged
  • Patient Discharge
  • Qualitative Research
  • Queensland
  • Social Support