A computer-assisted data collection system for use in a multicenter study of American Indians and Alaska Natives: SCAPES

Comput Methods Programs Biomed. 2008 Apr;90(1):38-55. doi: 10.1016/j.cmpb.2007.11.019. Epub 2008 Jan 18.

Abstract

We describe a computer-assisted data collection system developed for a multicenter cohort study of American Indian and Alaska Native people. The study computer-assisted participant evaluation system or SCAPES is built around a central database server that controls a small private network with touch screen workstations. SCAPES encompasses the self-administered questionnaires, the keyboard-based stations for interviewer-administered questionnaires, a system for inputting medical measurements, and administrative tasks such as data exporting, backup and management. Elements of SCAPES hardware/network design, data storage, programming language, software choices, questionnaire programming including the programming of questionnaires administered using audio computer-assisted self-interviewing (ACASI), and participant identification/data security system are presented. Unique features of SCAPES are that data are promptly made available to participants in the form of health feedback; data can be quickly summarized for tribes for health monitoring and planning at the community level; and data are available to study investigators for analyses and scientific evaluation.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • American Indian or Alaska Native / statistics & numerical data*
  • Cohort Studies
  • Database Management Systems*
  • Databases, Factual*
  • Humans
  • Information Storage and Retrieval / methods*
  • Interviews as Topic / methods*
  • Medical Records Systems, Computerized*
  • Multicenter Studies as Topic
  • Software
  • User-Computer Interface*