Partnering for care: the evidence and the expert

J Gerontol Nurs. 2009 Mar;35(3):16-22. doi: 10.3928/00989134-20090301-09.

Abstract

Evidence supports the maintenance of self-awareness in individuals with Alzheimer's disease (AD) and the individuals' ability to identify their own needs. The need for individualized, person-centered programming may be met only if the perceptions of the individuals with AD are taken into account and valued. There is strong support for individuals with AD to be involved in developing their plan of care. Plans should include supportive and educational programs, individualized to the person's self-identified needs. Plans must also take into account preserved self-awareness and address preservation of self-esteem, maintenance of abilities, management of behavioral symptoms including depression, and health promotion. Second author Richard Taylor, who has dementia, noted the absence of discussion on this joint planning in most of the AD literature. As he says, it omits the most important person, the person with dementia.

Publication types

  • Research Support, Non-U.S. Gov't
  • Review

MeSH terms

  • Activities of Daily Living / psychology
  • Alzheimer Disease* / complications
  • Alzheimer Disease* / diagnosis
  • Alzheimer Disease* / prevention & control
  • Alzheimer Disease* / psychology
  • Awareness
  • Cooperative Behavior
  • Evidence-Based Practice / organization & administration*
  • Health Promotion
  • Holistic Health
  • Humans
  • Internal-External Control
  • Needs Assessment
  • Nurse-Patient Relations
  • Nursing Assessment
  • Patient Care Planning / organization & administration*
  • Patient Education as Topic
  • Patient Participation* / methods
  • Patient Participation* / psychology
  • Patient-Centered Care / organization & administration*
  • Safety Management
  • Self Concept
  • Self-Assessment
  • Social Support