End-of-life research on patients' attitudes in Germany: a feasibility study

Support Care Cancer. 2010 Mar;18(3):317-20. doi: 10.1007/s00520-009-0654-y. Epub 2009 May 29.

Abstract

Introduction: So far, hardly any experience exists whether end-of-life research on patients' attitudes towards hastened death in Germany is feasible and how it is perceived by the patients.

Materials and methods: During the initial phase of a validation study of the German version of the Schedule of Attitudes towards Hastened Death, we documented reasons for non-inclusion.

Results and discussion: Of 124 patients seen on the participating palliative care units, 18 (15%) were finally included in the study. Reasons for non-inclusion were mainly due to the clinical status of the patients; the German specific history of involuntary euthanasia during the Nazi regime did not prevent patients to participate.

Conclusion: We conclude that end-of-life research in Germany is indeed feasible, however, faces difficulties similar to the international experience.

Publication types

  • Research Support, Non-U.S. Gov't
  • Validation Study

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Attitude to Death*
  • Communication Barriers
  • Cost of Illness*
  • Ethics, Research*
  • Feasibility Studies
  • Female
  • Germany
  • Humans
  • Interviews as Topic
  • Male
  • Middle Aged
  • Population Surveillance / methods
  • Surveys and Questionnaires*
  • Terminal Care / methods*