Overcoming challenges: life with an ostomy

Am J Surg. 2010 Nov;200(5):640-5. doi: 10.1016/j.amjsurg.2010.07.009.

Abstract

Background: Studies have demonstrated decreased health-related quality of life in patients with stomas.

Methods: Using US Department of Veterans Affairs electronic medical records, veterans with stomas were surveyed using the City of Hope Quality of Life-Ostomy questionnaire. Focus groups were conducted segregated by type of stoma (ileostomy vs colostomy) and quality-of-life score (high vs low). Qualitative analysis was performed on the basis of the City of Hope Quality of Life for Ostomates format of health-related quality of life (physical, psychological, social, and spiritual). The findings of the colostomy focus groups are reported.

Results: Two new domains emerged: colostomy specific and health care specific. The most common domains discussed were colostomy specific, psychological, and social. The most frequently discussed colostomy-specific theme was effective and ineffective solutions to colostomy care. Family and spousal relationships were the main theme from the psychological category. The predominant social issue was sexual relationships.

Conclusions: Awareness of patients' social, psychological, and medical status allows surgeons to identify those likely to have problems and devote resources to those veterans.

Publication types

  • Comparative Study
  • Multicenter Study
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Female
  • Focus Groups*
  • Humans
  • Male
  • Ostomy / psychology*
  • Quality of Life*
  • Surveys and Questionnaires
  • United States
  • Veterans / psychology*