Abstract
Glycogen storage diseases are important causes of myopathy and cardiomyopathy. We describe 10 patients from 8 families with childhood or juvenile onset of myopathy, 8 of whom also had rapidly progressive cardiomyopathy, requiring heart transplant in 4. The patients were homozygous or compound heterozygous for missense or truncating mutations in RBCK1, which encodes for a ubiquitin ligase, and had extensive polyglucosan accumulation in skeletal muscle and in the heart in cases of cardiomyopathy. We conclude that RBCK1 deficiency is a frequent cause of polyglucosan storage myopathy associated with progressive muscle weakness and cardiomyopathy.
© 2013 American Neurological Association.
Publication types
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Research Support, Non-U.S. Gov't
MeSH terms
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Adolescent
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Adult
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Cardiomyopathies / enzymology
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Cardiomyopathies / etiology
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Cardiomyopathies / genetics
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Female
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Genome, Human
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Glycogen Storage Disease / complications
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Glycogen Storage Disease / enzymology*
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Glycogen Storage Disease / genetics*
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Humans
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Male
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Middle Aged
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Muscle Weakness / enzymology
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Muscle Weakness / etiology
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Muscle Weakness / genetics
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Muscular Diseases / enzymology*
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Muscular Diseases / etiology
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Muscular Diseases / genetics*
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Mutation, Missense / genetics
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Nervous System Diseases / complications
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Nervous System Diseases / enzymology*
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Nervous System Diseases / genetics*
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Transcription Factors / deficiency*
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Ubiquitin / genetics*
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Ubiquitin-Protein Ligases
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Young Adult
Substances
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Transcription Factors
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Ubiquitin
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RBCK1 protein, human
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Ubiquitin-Protein Ligases
Supplementary concepts
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Polyglucosan Body Disease, Adult Form