Pediatrician identification of Latino children at risk for autism spectrum disorder

Pediatrics. 2013 Sep;132(3):445-53. doi: 10.1542/peds.2013-0383. Epub 2013 Aug 19.

Abstract

Background and objectives: Latino-white disparities in age at autism spectrum disorder (ASD) diagnosis may be modified by primary care pediatrician (PCP) practices and beliefs. The objectives of this study were to assess ASD and developmental screening practices, attitudes toward ASD identification in Latino children, and barriers to ASD identification for Latino children, in a sample of 267 California PCPs.

Methods: In mail-based PCP survey, we assessed rates of bilingual general developmental and ASD screening, perceptions of parent ASD knowledge in Latino and white families, reports of difficulty assessing for ASDs in Latino and white children, and perceptions of barriers to early ASD identification for Latinos.

Results: Although 81% of PCPs offered some form of developmental screening, 29% of PCPs offered Spanish ASD screening per American Academy of Pediatrics guidelines, and only 10% offered both Spanish general developmental and Spanish ASD screening per American Academy of Pediatrics guidelines. Most PCPs thought that Latino (English and Spanish primary family language) parents were less knowledgeable about ASDs than white parents. PCPs had more difficulty assessing ASD risk for Latino children with Spanish primary family language than for white children, even when the PCP conducted recommended ASD screening or had >25% Latino patients. The most frequent barrier to ASD identification in Latinos was access to developmental specialists.

Conclusions: Multiple factors in the primary care setting may contribute to delayed ASD identification for Latinos. Promoting language-appropriate screening, disseminating culturally appropriate ASD materials to Latino families, improving the specialist workforce, and providing PCP support in screening and referral of Latino children may be important ways to reduce racial and ethnic differences in care.

Keywords: Hispanic Americans; autism spectrum disorder; child development; developmental disabilities; developmental screening; health care disparities; pediatrics.

Publication types

  • Comparative Study

MeSH terms

  • Attitude of Health Personnel
  • California
  • Child
  • Child Development Disorders, Pervasive / diagnosis*
  • Child Development Disorders, Pervasive / ethnology*
  • Child Development Disorders, Pervasive / psychology
  • Communication Barriers
  • Culture
  • Developmental Disabilities / diagnosis
  • Developmental Disabilities / ethnology
  • Developmental Disabilities / psychology
  • Early Diagnosis
  • Guideline Adherence
  • Health Literacy
  • Health Services Accessibility
  • Health Surveys
  • Healthcare Disparities
  • Hispanic or Latino / psychology*
  • Humans
  • Mass Screening
  • Multilingualism
  • Pediatrics*
  • Primary Health Care
  • Risk Factors
  • White People / psychology*