Parent perspectives on family-based psychosocial interventions in pediatric cancer: a mixed-methods approach

Support Care Cancer. 2014 May;22(5):1287-94. doi: 10.1007/s00520-013-2083-1. Epub 2013 Dec 17.

Abstract

Family-based interventions in pediatric cancer face challenges associated with integrating psychosocial care into a period of intensive treatment and escalating stress. Little research has sought input from parents on the role of interventions delivered shortly after diagnosis. This mixed-methods study obtained parents' perspectives on the potential role of family-based interventions. Twenty-five parents provided feedback on the structure and timing of psychosocial interventions via focus groups and a questionnaire. Qualitative analyses resulted in three themes that were illustrative of a traumatic stress framework: (1) tension between focusing on child with cancer and addressing other family needs, (2) factors influencing parents' perception of a shared experience with other parents, and (3) the importance of matching interventions to the trajectory of parent adjustment. Quantitative data indicated that parents preferred intervention within 6 months of diagnosis, with almost half favoring within 2 months of diagnosis, and the majority wanted interventions targeted to parents only. Qualitative themes highlight the importance of using a traumatic stress framework to inform the development of family-based interventions for those affected by pediatric cancer.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adaptation, Psychological
  • Adolescent
  • Child
  • Child, Preschool
  • Family Therapy / methods*
  • Female
  • Focus Groups
  • Humans
  • Male
  • Neoplasms / psychology*
  • Neoplasms / therapy*
  • Parents / psychology*
  • Pediatrics
  • Surveys and Questionnaires