Determinants of subjective and objective burden of informal caregiving of patients with psychotic disorders

Int J Soc Psychiatry. 2015 Nov;61(7):684-92. doi: 10.1177/0020764015573088. Epub 2015 Mar 12.

Abstract

Background: In a previous study, the objective burden of informal caregiving to patients with psychotic disorders amounted to 22 hours/week, and the subjective burden was huge with predominately anxiety and depression as main symptoms. In this study, determinants of the informal caregiving burden are analyzed to find foci for interventions to ease the size of burden.

Methods: Patients with psychotic disorders (n = 107) and their informal caregivers (n = 118) were included. They were assessed with a comprehensive battery of rating scales including patient and caregiver characteristics as well as the amount and quality of health-care provision.

Results: A multiple linear regression analysis showed that the subjective burden was significantly lower when patients had higher levels of functioning and when the health status of the informal caregivers was good. No significant determinants were found for the objective burden, but an association was found between a higher socioeconomic status of the caregivers and the amount of money provided for the patient. An association was also found between a positive perception of caregiving and more hours spent on caregiving.

Conclusion: The functioning level of the patients was the main determinant of the subjective burden of informal care. For the objective burden, no main determinant was found.

Keywords: Informal caregiving; determinants; objective burden; schizophrenia; subjective burden.

Publication types

  • Multicenter Study
  • Observational Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living
  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Anxiety
  • Caregivers / economics*
  • Cost of Illness*
  • Cross-Sectional Studies
  • Depression
  • Female
  • Humans
  • Linear Models
  • Male
  • Middle Aged
  • Patient Care / economics*
  • Prospective Studies
  • Psychotic Disorders / economics*
  • Psychotic Disorders / psychology
  • Young Adult