Considerations Before Establishing an Environmental Health Registry

Am J Public Health. 2015 Aug;105(8):1543-51. doi: 10.2105/AJPH.2015.302642. Epub 2015 Jun 11.

Abstract

Public health registries can provide valuable information when health consequences of environmental exposures are uncertain or will likely take long to develop. They can also aid research on diseases that may have environmental causes that are not completely well defined. We discuss factors to consider when deciding whether to create an environmental health registry. Those factors include public health significance, purpose and outcomes, duration and scope of data collection and availability of alternative data sources, timeliness, availability of funding and administrative capabilities, and whether the establishment of a registry can adequately address specific health concerns. We also discuss difficulties, limitations, and benefits of exposure and disease registries, based on the experience of the Agency for Toxic Substances and Disease Registry.

MeSH terms

  • Capital Financing
  • Environmental Exposure / statistics & numerical data
  • Environmental Health / organization & administration*
  • Environmental Health / statistics & numerical data
  • Humans
  • Program Development
  • Registries*
  • Research Design