Introducing Biospecimen Science to Communities: Tools from Two Cities

Prog Community Health Partnersh. 2015;9 Suppl(Suppl):51-9. doi: 10.1353/cpr.2015.0024.

Abstract

Background: This article describes community-engaged processes employed by two Community Network Program Center (CNPC) sites located in Tampa, Florida, and Buffalo, New York, toward the development of Spanish/English educational products about biobanking and biospecimen research.

Methods: Each CNPC carried out a community-based participatory research (CBPR) approach that underscored six essential components that moved concepts to a final educational product in a highly participatory fashion. The similar CBPR processes at the two locations focused on the same topic, resulted in different engagement approaches and tools for their respective communities: 1) DVD and brochure toolkit and 2) PowerPoint, group program with audience response system (ARS).

Results: We detail a comparison of methods and applications for using these tools among diverse community groups to advance understandings about genetic and biomedical research technologies.

Conclusion: Ultimately, these tools and associated educational efforts emphasize the critical value of co-learning among academic and community members in biobanking and biospecimen research.

MeSH terms

  • Biological Specimen Banks*
  • Community Networks
  • Community-Based Participatory Research / organization & administration*
  • Health Education / organization & administration*
  • Health Knowledge, Attitudes, Practice
  • Humans
  • Minority Groups
  • National Cancer Institute (U.S.) / organization & administration*
  • Neoplasms / ethnology*
  • Racial Groups
  • United States