Complexity: An interpretative phenomenological analysis of the experiences of mothers of deaf children with cochlear implants and autism

J Health Psychol. 2018 Aug;23(9):1173-1184. doi: 10.1177/1359105316646171. Epub 2016 May 16.

Abstract

The purpose of this study was to explore the experiences of parenting a child with a dual diagnosis of childhood deafness and autism spectrum disorder who underwent cochlear implantation. Experiences of these parents are rarely discussed within the literature. Interpretive Phenomenological Analysis was used to examine nine mothers of boys (4-9 years old) for understanding their parenting experiences. Three superordinate themes were identified: complexity, personal and family sacrifices and parent-professional partnerships. These themes provide a rich account of mothers' interpretations of their experiences, and reflect the numerous challenges they face. This study helps expand the literature on cochlear implantation for children with autism spectrum disorder, and discusses implications for clinical and educational practice.

Keywords: autism spectrum disorder; cochlear implantation; interpretative phenomenological analysis; meaning; parenting.

MeSH terms

  • Adult
  • Autism Spectrum Disorder / epidemiology
  • Autism Spectrum Disorder / psychology*
  • Child
  • Child, Preschool
  • Cochlear Implants / psychology*
  • Cochlear Implants / statistics & numerical data
  • Comorbidity
  • Deafness / epidemiology
  • Deafness / psychology*
  • Deafness / therapy
  • Female
  • Humans
  • Male
  • Mothers / psychology*
  • Mothers / statistics & numerical data
  • Parenting / psychology*
  • Qualitative Research