Are Data Sharing and Privacy Protection Mutually Exclusive?

Yann Joly; Stephanie O M Dyke; Bartha M Knoppers; Tomi Pastinen

doi:10.1016/j.cell.2016.11.004

Are Data Sharing and Privacy Protection Mutually Exclusive?

Cell. 2016 Nov 17;167(5):1150-1154. doi: 10.1016/j.cell.2016.11.004.

Authors

Yann Joly¹, Stephanie O M Dyke², Bartha M Knoppers², Tomi Pastinen³

Affiliations

¹ Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada. Electronic address: [email protected].
² Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada.
³ Department of Human Genetics, McGill University, Montreal, QC H3A 1B1, Canada.

PMID: 27863233
DOI: 10.1016/j.cell.2016.11.004

Abstract

We review emerging strategies to protect the privacy of research participants in international epigenome research: open consent, genome donation, registered access, automated procedures, and privacy-enhancing technologies.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Genomics / ethics*
Genomics / legislation & jurisprudence*
High-Throughput Nucleotide Sequencing
Human Genome Project / ethics
Human Genome Project / legislation & jurisprudence
Humans
Information Dissemination*
Privacy*
Sequence Analysis, DNA