European Crohn's and Colitis Organisation Topical Review on Transitional Care in Inflammatory Bowel Disease

Patrick F van Rheenen; Marina Aloi; Irit Avni Biron; Katrine Carlsen; Rachel Cooney; Salvatore Cucchiara; Garret Cullen; Johanna C Escher; Jaroslaw Kierkus; James O Lindsay; Eleftheria Roma; Richard K Russell; Joanna Sieczkowska-Golub; Marcus Harbord

doi:10.1093/ecco-jcc/jjx010

European Crohn's and Colitis Organisation Topical Review on Transitional Care in Inflammatory Bowel Disease

J Crohns Colitis. 2017 Sep 1;11(9):1032-1038. doi: 10.1093/ecco-jcc/jjx010.

Affiliations

¹ Department of Paediatric Gastroenterology, University of Groningen, University Medical Centre Groningen,Groningen, The Netherlands.
² Paediatric Gastroenterology and Liver Unit, Sapienza University of Rome, University Hospital Umberto I, Rome, Italy.
³ Department of Gastroenterology, Rabin Medical Center - Beilinson Hospital, Petah Tikva, Israel.
⁴ Department of Paediatrics, Hvidovre University Hospital, Hvidovre, Denmark.
⁵ Department of Gastroenterology, Queen Elizabeth Hospital,Birmingham, UK.
⁶ Department of Gastroenterology, Centre for Colorectal Disease, St Vincent's University Hospital, Dublin, Ireland.
⁷ Department of Paediatric Gastroenterology, Erasmus University Medical Centre, Sophia Children's Hospital, Rotterdam, The Netherlands.
⁸ Department of Gastroenterology, Hepatology, Feeding Disorders and Paediatrics, Children's Memorial Health Institute, Warsaw, Poland.
⁹ Department of Gastroenterology, Barts Health NHS Trust, The Royal London Hospital, London, UK.
¹⁰ First Department of Paediatrics, Gastroenterology Unit, University of Athens, Athens, Greece.
¹¹ Department of Paediatric Gastroenterology, The Royal Hospital for Children, Glasgow, UK.
¹² Imperial College, London; and Chelsea and Westminster Hospital, London, UK.

PMID: 28158494
DOI: 10.1093/ecco-jcc/jjx010

Abstract

Background: This European Crohn's and Colitis Organisation [ECCO] topical review focuses on the transition of adolescents with inflammatory bowel disease [IBD] from child-centred to adult-oriented care. The aim was to provide evidence-supported, expert consensus for health professionals taking part in the transition.

Methods: An online survey determined the areas of importance for health professionals involved in the transition of adolescents with IBD. Thereafter an expert panel of nine paediatric and five adult gastroenterologists was formed to identify the critical elements of the transition programme, and to prepare core messages defined as 'current practice points'. There is limited literature about transition, therefore this review is mainly based on expert opinion and consensus, rather than on specific evidence.

Results: A total of 21 practice points were generated before the first [online] voting round. Practice points that reached >80% agreement were accepted, while those that did not reach 80% agreement were refined during a consensus meeting and subjected to voting. Ultimately, 14 practice points were retained by this review.

Conclusion: We present a consensus-based framework for transitional care in IBD that provides a guidance for clinical practice.

Keywords: Crohn’s disease; Transition to adult care; inflammatory bowel diseases; ulcerative colitis.

Publication types

Consensus Development Conference
Practice Guideline

MeSH terms

Adolescent
Adult
Humans
Inflammatory Bowel Diseases / therapy*
Outcome Assessment, Health Care
Transition to Adult Care*
Transitional Care*