[Adolescents with cystic fibrosis: the approach to transition from paediatric to adult care]

Arch Pediatr. 2016 Dec;23(12S):12S54-12S60. doi: 10.1016/S0929-693X(17)30063-5.
[Article in French]

Abstract

Because of early and effective therapies, an increasing numbers of young people with cystic fibrosis (CF) reach adulthood. Preparing for and maintaining high quality CF care in the adult healthcare is critical for prolonged survival. Because adverse health consequences occur when inadequate transition arrangements are in place, safely transferring patients from pediatric to adult care is a priority. Key features include an early preparation, planning and self-management skills, a coordinated approach and a detailed communication between patients, families, pediatric and adult teams. Formal transition protocols and audits can support the process and be helpful for multidisciplinary teams.

Publication types

  • Review

MeSH terms

  • Adolescent
  • Adult
  • Child
  • Cystic Fibrosis / diagnosis
  • Cystic Fibrosis / mortality
  • Cystic Fibrosis / therapy*
  • Humans
  • Interdisciplinary Communication
  • Intersectoral Collaboration
  • Prognosis
  • Survival Analysis
  • Transition to Adult Care*