Parent-to-parent peer support for parents of children with a disability: A mixed method study

Patient Educ Couns. 2017 Aug;100(8):1537-1543. doi: 10.1016/j.pec.2017.03.004. Epub 2017 Mar 6.

Abstract

Objectives: This paper will report on the findings of a study which investigated the influence of a befriending (parent-to-parent peer support) scheme on parents whose children have a disability or additional need. The scheme operated from an acute children's tertiary setting in the UK.

Methods: A prospective concurrent mixed method design collected interview (n=70) and questionnaire (n=68) data at two time-points from befrienders (n=13) and befriendees (n=26).

Results: The main qualitative findings of the study relate to the different degrees parents (befriendees and befrienders) moved from being lost, to finding and being a guide and getting to a better place. The quantitative findings demonstrate that parent-to-parent peer support has a positive influence on parents' levels of psychological distress and their ability to cope with being a parent of a child with a disability.

Conclusion: The befriending scheme acted as a catalyst for many parents to move towards a place where they could grow and begin to flourish and thrive.

Practice implications: Professionals should inform parents who have a child with a disability that peer-to-peer parenting support schemes are a valuable and appropriate source of support and help.

Keywords: Befriending; Disability; Parent; Parent well being; Peer to peer parenting support.

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Child
  • Disabled Children*
  • Female
  • Humans
  • Interviews as Topic
  • Male
  • Parent-Child Relations*
  • Parents / psychology*
  • Peer Group*
  • Prospective Studies
  • Scotland
  • Social Support*
  • Stress, Psychological
  • Surveys and Questionnaires