Health assessment instruments for people with intellectual disabilities-A systematic review

E J Bakker-van Gijssel; P L B J Lucassen; T C Olde Hartman; L van Son; W J J Assendelft; H M J van Schrojenstein Lantman-de Valk

doi:10.1016/j.ridd.2017.03.002

Health assessment instruments for people with intellectual disabilities-A systematic review

Res Dev Disabil. 2017 May:64:12-24. doi: 10.1016/j.ridd.2017.03.002. Epub 2017 Mar 16.

Authors

E J Bakker-van Gijssel¹, P L B J Lucassen², T C Olde Hartman³, L van Son⁴, W J J Assendelft⁵, H M J van Schrojenstein Lantman-de Valk⁶

Affiliations

¹ Radboud University Nijmegen Medical Center, Department of Primary and Community Care, PO Box 9101, 6500 HB Nijmegen, The Netherlands; Siza, Residential Care Facility For People With Disabilities, PO Box 532, 6800 AM Arnhem, The Netherlands. Electronic address: [email protected].
² Radboud University Nijmegen Medical Center, Department of Primary and Community Care, PO Box 9101, 6500 HB Nijmegen, The Netherlands. Electronic address: [email protected].
³ Radboud University Nijmegen Medical Center, Department of Primary and Community Care, PO Box 9101, 6500 HB Nijmegen, The Netherlands. Electronic address: [email protected].
⁴ Radboud University Nijmegen Medical Center, Department of Primary and Community Care, PO Box 9101, 6500 HB Nijmegen, The Netherlands. Electronic address: [email protected].
⁵ Radboud University Nijmegen Medical Center, Department of Primary and Community Care, PO Box 9101, 6500 HB Nijmegen, The Netherlands. Electronic address: [email protected].
⁶ Radboud University Nijmegen Medical Center, Department of Primary and Community Care, PO Box 9101, 6500 HB Nijmegen, The Netherlands. Electronic address: [email protected].

PMID: 28327382
DOI: 10.1016/j.ridd.2017.03.002

Abstract

Background: People with intellectual disabilities (ID) experience health disparities and are less likely to undergo recommended age- and gender-specific screening and health promotion. New diagnoses are frequently missed. Assessments with the aid of health assessment instruments are a way to address these problems.

Aim: The aim of this review is to find the available health assessment instruments for people with ID used in primary care and evaluate their quality.

Methods: We conducted an electronic literature search of papers published between January 2000 and May 2016. After a two-phase selection process (kappa: 0.81 and 0.77) we collected data from the 29 included peer-reviewed articles on the following four domains; development, clinimetric properties (i.e. validity, reliability, feasibility, acceptability), content (i.e. ID-related health problems, prevention and health promotion topics) and effectiveness of the instruments.

Results/conclusions: We distinguished 20 different health assessment instruments. Limited information was found on the development of the instruments as well as on their clinimetric properties. The content of the instruments was rather diverse. The included papers agreed that health assessment instruments are effective. However, only three instruments evaluated effectiveness in a randomised controlled trial. Patients with ID, carers and general practitioners (GPs) generally appreciated the health assessment instruments.

Implication: Two instruments, "Stay well and healthy -Health risk appraisal (SWH-HRA)"and the "Comprehensive Health Assessment Programme (CHAP)", appeared to have the highest quality. These instruments can be used to construct a health assessment instrument for people with ID that meets scientific standards.

Keywords: General practice; Health screening; Intellectual disability; Primary health care; Review.

Publication types

Review
Systematic Review

MeSH terms

Health Promotion / methods*
Health Status
Health Status Indicators*
Humans
Intellectual Disability* / diagnosis
Intellectual Disability* / physiopathology