Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 2: terminology proposed to measure what matters in health

J Clin Epidemiol. 2017 Sep:89:119-124. doi: 10.1016/j.jclinepi.2017.04.013. Epub 2017 Apr 20.

Abstract

Background: We outline different health outcomes and describe how multiple perspectives can be harnessed to optimize accuracy of key data collected about patients with chronic conditions. The terms health status, health-related quality of life, and quality of life are often used interchangeably without recognizing that they have different meanings, as are the terms used to refer to the different components of function. Although the advantages and limitations of existing frameworks and perspectives are largely understood, greater precision is needed when using health outcome terminology and identifying optimal sources of information.

Objective: A refinement of the current taxonomy is proposed to distinguish between patient-reported outcomes and self-report outcomes and expand the concept of clinically reported outcomes to include those assessed by performance and emerging technologies.

Discussion: Health outcomes yield important information that can be used to improve the lives of many people. Now is the time to "talk the talk" as part of larger coordinated efforts within and across countries to identify and measure what matters most in health.

Keywords: Health; Health status; Health-related quality of life; Measurement; Outcomes; Quality of life.

MeSH terms

  • Canada
  • Congresses as Topic
  • Health Status*
  • Humans
  • Patient Reported Outcome Measures*
  • Quality of Life*
  • Terminology as Topic*