Culturally Relevant Palliative and End-of-Life Care for U.S. Indigenous Populations: An Integrative Review

J Transcult Nurs. 2018 Mar;29(2):180-191. doi: 10.1177/1043659617720980. Epub 2017 Jul 22.

Abstract

Purpose: American Indians/Alaska Natives (AIs/ANs) have higher rates of chronic illness and lack access to palliative/end-of-life (EOL) care. This integrative review ascertained the state of the science on culturally acceptable palliative/EOL care options for Indigenous persons in the United States.

Design: Databases searched: CINAHL, PubMed/MEDLINE, SocINDEX, PsycINFO, PsycARTICLES, ERIC, Health Source: Nursing/Academic Edition, and EBSCO Discovery Service 1880s-Present. Key terms used: palliative care, EOL care, and AI/AN.

Inclusion criteria: peer-reviewed articles published in English. Findings/Results: Twenty-nine articles were identified, 17 remained that described culturally specific palliative/EOL care for AIs/ANs. Synthesis revealed four themes: Communication, Cultural Awareness/Sensitivity, Community Guidance for Palliative/EOL Care Programs, Barriers and two subthemes: Trust/Respect and Mistrust.

Discussion/conclusion: Limitations are lack of research funding, geographic isolation, and stringent government requirements. Palliative/EOL care must draw on a different set of skills that honor care beyond cure provided in a culturally sensitive manner.

Keywords: end-of-life care; health disparities; language and communication; transcultural health.

Publication types

  • Review

MeSH terms

  • Alaska / ethnology
  • Alaska Natives / ethnology*
  • Alaska Natives / psychology
  • Culturally Competent Care / methods
  • Culturally Competent Care / standards*
  • Health Services, Indigenous / standards*
  • Humans
  • Terminal Care / methods
  • Terminal Care / psychology
  • Terminal Care / standards*