Creating a data resource: what will it take to build a medical information commons?

Affiliations

• ¹ American Institutes for Research, Health Care Group, 100 Europa Drive, Suite 315, Chapel Hill, NC, 27517, USA.
• ² Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Houston, TX, 77030, USA.
• ³ Deloitte, 1919 N Lynn, Arlington, VA, 22209, USA.
• ⁴ Children's Tumor Foundation, 120 Wall Street, 16th Floor, New York, NY, 10005, USA.
• ⁵ Department of English, Concordia University, 1455 Boulevard de Maisonneuve O, Montreal, QC, H3G 1M8, Canada.
• ⁶ Human Genetics Center, School of Public Health, The University of Texas Health Science Center at Houston and Human Genome Sequencing Center, Baylor College of Medicine, One Baylor Plaza, Houston, TX, 77030, USA.
• ⁷ Faculty of Health Sciences, Simon Fraser University, 8888 University Drive, Burnaby, BC, V5A 1S6, Canada.
• ⁸ Law Center and Department of Electrical and Computer Engineering, University of Houston, 4604 Calhoun Road, Houston, TX, 77004, USA.
• ⁹ Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institutes, 1900 Ninth Avenue, Room 677, Seattle, WA, 98101, USA.
• ¹⁰ Human Genome Sequencing Center, Baylor College of Medicine, One Baylor Plaza, Houston, TX, 77030, USA.
• ¹¹ 23andMe, 899 West Evelyn Avenue, Mountain View, CA, 94041, USA.
• ¹² Verily Life Sciences LLC, 269 E. Grand Avenue, South San Francisco, CA, 94080, USA.
• ¹³ Milken Institute School of Public Health, The Georgetown Washington University, 950 New Hampshire Avenue, NW, Second Floor, Washington, DC, 20052, USA.
• ¹⁴ Center for Law and the Biosciences, Stanford University, Neukom N361, Stanford, CA, 94305, USA.
• ¹⁵ Illumina, Inc., 5200 Research Pl, San Diego, CA, 92122, USA.
• ¹⁶ Centre of Genomics and Policy, McGill University, Montreal, 740 Avenue Drive Penfield, Suite 5200, Montreal, Quebec, H3A 0G1, Canada.
• ¹⁷ Institute for Health and Aging, and Department of Anthropology, History, and Social Medicine, University of California San Francisco, San Francisco, CA, 94143, USA.
• ¹⁸ Department of Biomedical Informatics, Harvard Medical School, 10 Shattuck Street, Boston, MA, 02115, USA.
• ¹⁹ Kaiser Permanente, University of California San Diego and Singularity University, 4965 Maynard Street, San Diego, CA, 92122, USA.
• ²⁰ Center for Population Genomics, Boston Veterans Administration Healthcare, 73 Mount Wayte Avenue, Framingham, MA, 01702, USA.
• ²¹ Duke University School of Law; Duke Innovation and Entrepreneurship Initiative, 210 Science Drive, Box 90360, Durham, NC, 27708, USA.
• ²² Harvard Medical School, Brigham and Women's Hospital and The Broad Institute of MIT and Harvard, 65 Landsdowne Street, Cambridge, MA, 02139, USA.
• ²³ Division of Policy, Communications, and Education, National Human Genome Research Institute 31 Center Drive, Room 4B09, Bethesda, MD, 20892, USA.
• ²⁴ Private Access, Inc, 19800 MacArthur Boulevard, Suite 300, Irvine, CA, 92612, USA.
• ²⁵ Broad Institute of Harvard and MIT, 415 Main Street, Cambridge, MA, 02142, USA.
• ²⁶ Genetic Alliance, 4301 Connecticut Avenue, NW, Suite 404, Washington, DC, 20008, USA.
• ²⁷ American College of Medical Genetics and Genomics, 7101 Wisconsin Avenue, Suite 1101, Bethesda, MD, 20814, USA.
• ²⁸ Sage Bionetworks, 1100 Fairview Avenue N., Mailstop M1-C108, Seattle, WA, 98109, USA.
• ²⁹ School for the Future of Innovation in Society and Consortium for Science, Policy and Outcomes, Arizona State University, and Senior Fellow, FasterCures, a Center of the Milken Institute, 1834 Connecticut Avenue, NW, Washington, DC, 20009, USA.
• ³⁰ Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Houston, TX, 77030, USA. [email protected].