Review of European registries for psoriasis

J Dermatolog Treat. 2019 May;30(3):227-236. doi: 10.1080/09546634.2018.1506084. Epub 2018 Sep 14.

Abstract

Background: Patient registries are databases that contain clinical data for patients with a specific disease or medical condition.

Objective: The purpose was to identify psoriasis registries in Europe and examine their characteristics and implications.

Methods: We searched Google, the Registry of Patient Registries, and ClinicalTrials.gov to generate a list of European psoriasis registries. We also conducted a literature review for publications related to the psoriasis registries in Europe using PubMed.

Results: We identified 13 psoriasis patient registries in Europe.

Conclusions: Patient registries are routinely used in dermatology and psoriasis registries offer pertinent long-term safety information regarding conventional systemic therapies and biologic agents for psoriasis.

Keywords: Europe; Psoriasis; patient registries; post-marketing surveillance; registry trials.

Publication types

  • Review

MeSH terms

  • Adult
  • Databases, Factual / statistics & numerical data
  • Dermatology / statistics & numerical data
  • Europe
  • Female
  • Humans
  • Psoriasis*
  • Registries / statistics & numerical data*