Association of state-level and individual-level factors with choice making of individuals with intellectual and developmental disabilities

Res Dev Disabil. 2018 Dec:83:77-90. doi: 10.1016/j.ridd.2018.08.008. Epub 2018 Aug 23.

Abstract

Background: State-level factors have not been examined in research on choice, despite findings of between-state differences.

Aims: To examine both individual and state-level factors associated with choice.

Methods and procedures: We used multilevel modeling to explore two choice scales, support-related and everyday choice, based on the National Core Indicators (NCI) data from 2013-14.

Outcomes and results: At the individual level, milder ID, greater mobility, fewer problem behaviors, answering questions independently, communicating verbally, and living in a non-agency setting, particularly independent settings, were associated with more choice for both scales. State-level factors overall explained variance for both scales, but were more strongly associated with support-related choice. A higher proportion of people with IDD living independently within the state predicted more support-related choice. High cost of living within a state predicted less everyday choice. Higher proportion of people living with family and lower proportion being served within a state predicted more everyday choice.

Conclusions and implications: These findings suggest further study of choice in relation to policies that: (1) increase independent living for individuals with IDD, and (2) assist individuals/families living in high cost states. State differences on important QOL outcomes are likely to be associated with economic and system-based factorsbeyond individual differences.

Keywords: Choice; Community living; Cost of living; Intellectual disability; Residence type; State factors.

MeSH terms

  • Activities of Daily Living
  • Choice Behavior*
  • Cost of Illness*
  • Decision Making*
  • Developmental Disabilities* / economics
  • Developmental Disabilities* / epidemiology
  • Developmental Disabilities* / psychology
  • Female
  • Humans
  • Independent Living* / psychology
  • Independent Living* / statistics & numerical data
  • Intellectual Disability* / economics
  • Intellectual Disability* / epidemiology
  • Intellectual Disability* / psychology
  • Male
  • Needs Assessment
  • Psychiatric Status Rating Scales
  • Severity of Illness Index
  • Social Support
  • Socioeconomic Factors
  • United States / epidemiology