Data Rich, Information Poor: Can We Use Electronic Health Records to Create a Learning Healthcare System for Pharmaceuticals?

Clin Pharmacol Ther. 2019 Apr;105(4):912-922. doi: 10.1002/cpt.1226. Epub 2018 Oct 14.

Abstract

Judicious use of real-world data (RWD) is expected to make all steps in the development and use of pharmaceuticals more effective and efficient, including research and development, regulatory decision making, health technology assessment, pricing, and reimbursement decisions and treatment. A "learning healthcare system" based on electronic health records and other routinely collected data will be required to harness the full potential of RWD to complement evidence based on randomized controlled trials. We describe and illustrate with examples the growing demand for a learning healthcare system; we contrast the exigencies of an efficient pharmaceutical ecosystem in the future with current deficiencies highlighted in recently published Organisation for Economic Co-operation and Development (OECD) reports; and we reflect on the steps necessary to enable the transition from healthcare data to actionable information. A coordinated effort from all stakeholders and international cooperation will be required to increase the speed of implementation of the learning healthcare system, to everybody's benefit.

MeSH terms

  • Decision Making
  • Delivery of Health Care / legislation & jurisprudence*
  • Drug Development / legislation & jurisprudence*
  • Drug Industry / legislation & jurisprudence*
  • Electronic Health Records / legislation & jurisprudence*
  • Humans
  • International Cooperation / legislation & jurisprudence
  • Learning Health System / legislation & jurisprudence*
  • Randomized Controlled Trials as Topic / legislation & jurisprudence
  • Technology Assessment, Biomedical / legislation & jurisprudence