The patient experience of kidney disease and pregnancy

Shilpanjali Jesudason; Allison Tong

doi:10.1016/j.bpobgyn.2018.12.003

The patient experience of kidney disease and pregnancy

Best Pract Res Clin Obstet Gynaecol. 2019 May:57:77-88. doi: 10.1016/j.bpobgyn.2018.12.003. Epub 2018 Dec 12.

Authors

Shilpanjali Jesudason¹, Allison Tong²

Affiliations

¹ Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Port Road, Adelaide, South Australia, 5000, Australia; Department of Medicine, University of Adelaide, Adelaide, South Australia, 5000, Australia. Electronic address: [email protected].
² Sydney School of Public Health, The University of Sydney, New South Wales, 2006, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, New South Wales, 2145, Australia.

PMID: 30600168
DOI: 10.1016/j.bpobgyn.2018.12.003

Abstract

Achieving parenthood is often a priority and goal for women with chronic kidney disease (CKD). It can be challenging due to medical and emotional complexities around pregnancy planning and care, increased risk of adverse maternal and fetal outcomes, fears about medications such as immunosuppressants and fetal harm, and concerns regarding the impact of pregnancy on women's kidney health. Navigating the pathways for shared decision-making regarding parenthood requires an understanding of the patient's experiences, values, priorities, and needs. In this review, we describe the patient perspective of high-risk pregnancies including those complicated by CKD and outline recommendations for counseling that incorporate these perspectives to improve the patient experience.

Keywords: High risk; Kidney disease; Maternal health; Patient experience; Pregnancy; Shared decision-making.

Publication types

Review

MeSH terms

Attitude of Health Personnel
Decision Making, Shared
Directive Counseling
Female
Health Knowledge, Attitudes, Practice*
Humans
Motivation
Patient Satisfaction
Pregnancy
Pregnancy Complications / psychology*
Pregnancy, High-Risk / psychology*
Prenatal Care
Quality of Life
Renal Insufficiency, Chronic / psychology*