Transparent sharing of digital health data: A call to action

David J Slotwiner; Khaldoun G Tarakji; Sana M Al-Khatib; Rod S Passman; Leslie A Saxon; Nicholas S Peters; Debbe McCall; Mintu P Turakhia; Jill Schaeffer; G Stuart Mendenhall; Gerhard Hindricks; Sanjiv M Narayan; Elizabeth E Davenport; Nassir F Marrouche

doi:10.1016/j.hrthm.2019.04.042

Transparent sharing of digital health data: A call to action

Heart Rhythm. 2019 Sep;16(9):e95-e106. doi: 10.1016/j.hrthm.2019.04.042. Epub 2019 May 8.

Affiliations

¹ NewYork-Presbyterian Queens, Cardiology Division, Weill Cornell Medical College, New York, New York. Electronic address: [email protected].
² Cleveland Clinic, Cleveland, Ohio.
³ Duke University, Durham, North Carolina.
⁴ Northwestern University Feinberg School of Medicine, Chicago, Illinois.
⁵ Center for Body Computing, Keck School of Medicine, University of Southern California, Los Angeles, California.
⁶ Imperial College London, and NHS Trust, London, United Kingdom.
⁷ Functioning as the lay volunteer/patient representative.

PMID: 31077802
DOI: 10.1016/j.hrthm.2019.04.042

No abstract available

Keywords: Body computing; Cardiovascular implantable electronic devices; Consumer wearable heart rhythm monitors; Digital health; Mobile cardiac telemetry; Open charting; Personal health record.

MeSH terms

Access to Information
Cardiac Electrophysiology* / ethics
Cardiac Electrophysiology* / instrumentation
Cardiac Electrophysiology* / methods
Cardiac Electrophysiology* / trends
Cardiovascular Diseases* / diagnosis
Cardiovascular Diseases* / therapy
Confidentiality / ethics
Health Services Needs and Demand
Humans
Information Dissemination / ethics*
Medical Device Legislation
Medical Record Linkage / methods
Monitoring, Ambulatory / methods
Stakeholder Participation
Telemedicine* / ethics
Telemedicine* / instrumentation
Telemedicine* / legislation & jurisprudence
Telemedicine* / standards
Wearable Electronic Devices / ethics*