The NEW ESID online database network

Raphael Scheible; Stephan Rusch; David Guzman; Nizar Mahlaoui; Stephan Ehl; Gerhard Kindle

doi:10.1093/bioinformatics/btz525

The NEW ESID online database network

Bioinformatics. 2019 Dec 15;35(24):5367-5369. doi: 10.1093/bioinformatics/btz525.

Authors

Raphael Scheible^{1

2}, Stephan Rusch^{2

3}, David Guzman⁴, Nizar Mahlaoui⁵, Stephan Ehl², Gerhard Kindle^{2

3}

Affiliations

¹ Institute of Medical Biometry and Statistics.
² Institute for Immunodeficiency, Center for Chronic Immunodeficiency (CCI).
³ Central Facility Biobanking, Faculty of Medicine, Medical Center - University of Freiburg, Freiburg, Germany.
⁴ Department of Computer Science, University College London, London, UK.
⁵ French National Reference Center for Primary Immune Deficiencies (CEREDIH), Necker Enfants Malades University Hospital, Assistance Publique-Hôpitaux de Paris, Paris, France.

PMID: 31263866
DOI: 10.1093/bioinformatics/btz525

Abstract

Summary: Primary Immunodeficiencies (PIDs) belong to the group of rare diseases. The European Society for Immunodeficiencies (ESID) operates an international research database application for continuous long-term documentation of patient data. The system is a web application which runs in a standard browser. Therefore, the system is easy to access from any location. Technically, the system is based on Gails backed by MariaDB with high standard security features to comply with the demands of a modern research platform.

Availability and implementation: The ESID Online Database is accessible via the official website: https://esid.org/Working-Parties/Registry-Working-Party/ESID-Registry. A demo system is available via: https://cci-esid-reg-demo-app.uniklinik-freiburg.de/EERS with user demouser and password Demo-2019.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Databases, Factual
Humans
Immunologic Deficiency Syndromes*
Rare Diseases
Software