Documentation of Palliative and End-of-Life Care Process Measures Among Young Adults Who Died of Cancer: A Natural Language Processing Approach

J Adolesc Young Adult Oncol. 2020 Feb;9(1):100-104. doi: 10.1089/jayao.2019.0040. Epub 2019 Aug 14.

Abstract

Few studies have investigated palliative and end-of-life care processes among young adults (YAs), aged 18-34 years, who died of cancer. This retrospective study used a natural language processing algorithm to identify documentation and timing of four process measures in YA cancer decedents' medical records: palliative care involvement, discussions of goals of care, code status, and hospice. Among 2878 YAs, 138 had a recorded date of death. In this group, 54.3% had at least one process measure documented early (31-180 days before death), 18.0% had only late documentation of process measures (0-30 days), and 27.5% had none documented.

Keywords: hospices; natural language processing; palliative care; retrospective studies.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Documentation / methods*
  • Female
  • Humans
  • Male
  • Natural Language Processing*
  • Neoplasms / mortality*
  • Palliative Care / methods*
  • Survival Analysis
  • Terminal Care / methods*
  • Young Adult