"Patient Journeys": improving care by patient involvement
Eur J Hum Genet
.
2020 Feb;28(2):141-143.
doi: 10.1038/s41431-019-0555-6.
Epub 2019 Dec 4.
Authors
Matt Bolz-Johnson
1
,
Jelena Meek
2
,
Nicoline Hoogerbrugge
3
Affiliations
1
SquareRootThinking and EURORDIS - Rare Diseases Europe, Paris, France.
2
Human Genetics, Radboud University Medical Center, Nijmegen, The Netherlands.
3
Human Genetics, Radboud University Medical Center, Nijmegen, The Netherlands.
[email protected]
.
PMID:
31801983
PMCID:
PMC6974600
DOI:
10.1038/s41431-019-0555-6
No abstract available
MeSH terms
Communication
Genetic Diseases, Inborn / psychology*
Humans
Patient Education as Topic
Patient Participation*
Patients / psychology
Social Media*