Embedded palliative care for patients with metastatic colorectal cancer: a mixed-methods pilot study

Support Care Cancer. 2020 Dec;28(12):5995-6010. doi: 10.1007/s00520-020-05437-6. Epub 2020 Apr 14.

Abstract

Purpose: Palliative care is recommended for patients with metastatic cancer, but there has been limited research about embedded palliative care for specific patient populations. We describe the impact of a pilot program that provided routine, early, integrated palliative care to patients with metastatic colorectal cancer.

Methods: Mixed methods pre-post intervention cohort study at an academic cancer center. Thirty control then 30 intervention patients with metastatic colorectal cancer were surveyed at baseline and 1, 3, 6, 9, and 12 months thereafter about symptoms, quality-of-life, and likelihood of cure. We compared survey responses, trends over time, rates of advance care planning, and healthcare utilization between groups. Patients, family caregivers, and clinicians were interviewed.

Results: Patients in the intervention group were followed for an average of 6.5 months and had an average of 3.5 palliative care visits. At baseline, symptoms were mild (average 1.85/10) and 78.2% of patients reported good/excellent quality-of-life. Half (50.9%) believed they were likely to be cured of cancer. Over time, symptoms and quality-of-life metrics remained similar between groups, however intervention patients were more realistic about their likelihood of cure (p = 0.008). Intervention patients were more likely to have a surrogate documented (83.3% vs. 26.7%, p < 0.0001), an advance directive completed (63.3% vs. 13.3%, p < 0.0001), and non-full code status (43.3% vs. 16.7%, p < 0.03). All patients and family caregivers would recommend the program to others with cancer.

Conclusions: We describe the impact of an embedded palliative care program for patients with metastatic colorectal cancer, which improved prognostic awareness and rates of advance care planning.

Keywords: Advance care planning; Colorectal cancer; Palliative care; Pilot program; Supportive care; Symptom management.

MeSH terms

  • Advance Care Planning
  • Advance Directives / statistics & numerical data*
  • Caregivers
  • Cohort Studies
  • Colorectal Neoplasms / pathology
  • Colorectal Neoplasms / therapy*
  • Female
  • Hospice and Palliative Care Nursing / methods*
  • Humans
  • Male
  • Middle Aged
  • Palliative Care / methods*
  • Pilot Projects
  • Quality of Life / psychology
  • Surveys and Questionnaires