Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Affiliations

• ¹ Centro Clinico Nemo, Fondazione Policlinico Universitario A. Gemelli IRCSS, Rome, Italy; Pediatric Neurology Unit, Catholic University, Largo Gemelli 8, 00168 Rome, Italy. Electronic address: [email protected].
• ² Department of Clinical and Experimental Medicine, University of Messina, Messina, Italy.
• ³ Department of Rehabilitation and Regenerative Medicine, Columbia University Irving Medical Center, New York, United States; Department of Neurology, Columbia University Irving Medical Center, New York, United States.
• ⁴ Dubowitz Neuromuscular Centre, UCL Institute of Child Health & Great Ormond Street Hospital, London, United Kingdom; NIHR Great Ormond Street Hospital Biomedical Research Centre, London, United Kingdom.
• ⁵ Neurorehabilitation Unit, University of Milan, Centro Clinico Nemo, Niguarda Hospital, Milano, Italy.
• ⁶ Rome, Italy.
• ⁷ Orlando, USA.
• ⁸ Madrid, Spain.
• ⁹ Chicago, USA.
• ¹⁰ Stanford, USA.
• ¹¹ Basel, Switzerland.
• ¹² Rochester, USA.
• ¹³ Heimberg, Switzerland.
• ¹⁴ California, USA.
• ¹⁵ Newcastle, USA.
• ¹⁶ Messina, Italy.
• ¹⁷ New York, USA.
• ¹⁸ London, UK.
• ¹⁹ Boston, USA.
• ²⁰ Germany.
• ²¹ Cambridge, USA.
• ²² Milan, Italy.
• ²³ Illinois, USA.