Health Information Technology Utilization by Adolescent and Young Adult Aged Inpatients Undergoing Hematopoietic Cell Transplantation

J Adolesc Young Adult Oncol. 2021 Feb;10(1):100-104. doi: 10.1089/jayao.2020.0079. Epub 2020 Jul 21.

Abstract

This longitudinal study examined feasibility of "Roadmap 1.0," a modular health information application integrated with the electronic medical record, provided to 30 adolescent and young adult (AYA) inpatients 11-24 years of age undergoing hematopoietic stem cell transplantation (HSCT). Feasibility was demonstrated: 70% accessed the application. Utilization was highest the first 2 weeks of hospitalization, with the laboratory results module used most. Users' tension and fatigue were higher than nonusers' at baseline, but not hospital discharge or day 100. Results suggest AYAs utilize health information technology in ways consistent with the HSCT trajectory and Roadmap 1.0 addressed informational and psychological needs.

Keywords: health information technology; hematopoietic stem cell transplantation; self-management.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adolescent
  • Aged
  • Fatigue
  • Female
  • Hematopoietic Stem Cell Transplantation*
  • Humans
  • Inpatients
  • Longitudinal Studies
  • Male
  • Medical Informatics*
  • Young Adult