Obtaining EQ-5D-5L utilities from the disease specific quality of life Alzheimer's disease scale: development and results from a mapping study

Qual Life Res. 2021 Mar;30(3):867-879. doi: 10.1007/s11136-020-02670-8. Epub 2020 Oct 17.

Abstract

Purpose: The Quality of Life Alzheimer's Disease Scale (QoL-AD) is commonly used to assess disease specific health-related quality of life (HRQoL) as rated by patients and their carers. For cost-effectiveness analyses, utilities based on the EQ-5D are often required. We report a new mapping algorithm to obtain EQ-5D indices when only QoL-AD data are available.

Methods: Different statistical models to estimate utility directly, or responses to individual EQ-5D questions (response mapping) from QoL-AD, were trialled for patient-rated and proxy-rated questionnaires. Model performance was assessed by root mean square error and mean absolute error.

Results: The response model using multinomial regression including age and sex, performed best in both the estimation dataset and an independent dataset.

Conclusions: The recommended mapping algorithm allows researchers for the first time to estimate EQ-5D values from QoL-AD data, enabling cost-utility analyses using datasets where the QoL-AD but no utility measures were collected.

Keywords: Cross-walking; Dementia; Health related quality of life; Mapping algorithm; Preference based measures.

MeSH terms

  • Algorithms
  • Alzheimer Disease / psychology*
  • Female
  • Humans
  • Male
  • Quality of Life / psychology*
  • Surveys and Questionnaires