Pregnancy in MNGIE: a clinical and metabolic honeymoon

Ann Clin Transl Neurol. 2020 Dec;7(12):2484-2488. doi: 10.1002/acn3.51202. Epub 2020 Nov 7.

Abstract

Mitochondrial neurogastrointestinal encephalomyopathy (MNGIE) is an inherited disease caused by a deficiency in thymidine phosphorylase and characterized by elevated systemic deoxyribonucleotides and gastrointestinal (GI) and neurological manifestations. We report the clinical and biochemical manifestations that were evaluated in a single patient before, during, and after pregnancy, over a period of 7 years. GI symptoms significantly improved, and plasma deoxyribonucleotide concentrations decreased during pregnancy. Within days after delivery, the patient's digestive symptoms recurred, coinciding with a rapid increase in plasma deoxyribonucleotide concentrations. We hypothesize that the clinico-metabolic improvements could be attributed to the enzyme replacement action of the placental thymidine phosphorylase.

Publication types

  • Case Reports

MeSH terms

  • Activities of Daily Living
  • Adult
  • Disease Progression*
  • Female
  • Gastrointestinal Diseases* / metabolism
  • Gastrointestinal Diseases* / physiopathology
  • Humans
  • Mitochondrial Encephalomyopathies* / metabolism
  • Mitochondrial Encephalomyopathies* / physiopathology
  • Pregnancy
  • Pregnancy Complications* / metabolism
  • Pregnancy Complications* / physiopathology
  • Quality of Life
  • Young Adult