Depression in independent young adults on the autism spectrum: Demographic characteristics, service use, and barriers

Autism. 2021 Oct;25(7):1960-1972. doi: 10.1177/13623613211008276. Epub 2021 Apr 28.

Abstract

Depression is common among adults on the autism spectrum, but little is known about the extent to which these adults living in the community access diagnostic and treatment services for depression. To address this gap, we surveyed 315 adults on the autism spectrum on depression symptoms, diagnosis, and services. About half of the sample had scores on standard depression measures that suggested they were currently depressed (n = 147, 46.7%). Among the currently depressed, most of them had received a depression diagnosis from a professional. Depressed females were about 3.5 times more likely than depressed males to have a depression diagnosis. More than half of the currently depressed adults on the autism spectrum reported receiving depression treatment at the time of the study, while about two-thirds had previously received treatment. Those with a depression diagnosis were more likely to have received treatment, and those who had some education beyond high school were more likely to be currently receiving treatment. Financial and insurance issues were the most common barriers that adults reported in accessing treatment for depression.

Keywords: depression diagnosis; depression treatment; service barriers; sex differences.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Autism Spectrum Disorder* / diagnosis
  • Autism Spectrum Disorder* / epidemiology
  • Autism Spectrum Disorder* / therapy
  • Autistic Disorder*
  • Child
  • Child Development Disorders, Pervasive*
  • Demography
  • Depression / diagnosis
  • Depression / epidemiology
  • Depression / therapy
  • Female
  • Humans
  • Male
  • Young Adult