Individual Patient-Level Data Sharing for Continuous Learning: A Strategy for Trial Data Sharing

Richard E Kuntz; Elliott M Antman; Robert M Califf; Julie R Ingelfinger; Harlan M Krumholz; Alexander Ommaya; Eric D Peterson; Joseph S Ross; Joanne Waldstreicher; Shirley V Wang; Deborah A Zarin; Danielle M Whicher; Sameer M Siddiqi; Marianne Hamilton Lopez

doi:10.31478/201906b

Individual Patient-Level Data Sharing for Continuous Learning: A Strategy for Trial Data Sharing

NAM Perspect. 2019 Jul 1:2019:10.31478/201906b. doi: 10.31478/201906b. eCollection 2019.

Affiliations

¹ Medtronic, Inc.
² Harvard Medical School.
³ Duke University.
⁴ Yale School of Medicine.
⁵ Association of American Medical Colleges.
⁶ Duke Clinical Research Institute.
⁷ Yale University School of Medicine.
⁸ Johnson & Johnson.
⁹ National Academy of Medicine.
¹⁰ Duke-Margolis Center for Health Policy.

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The views expressed in this paper are those of the authors and not necessarily of the authors’ organizations, the National Academy of Medicine (NAM), or the National Academies of Sciences, Engineering, and Medicine (the National Academies). The paper is intended to help inform and stimulate discussion. It is not a report of the NAM or the National Academies. Copyright by the National Academy of Sciences.