A new scale informed by the Reciprocal-Engagement Model for quality evaluation of genetic counselling by patients: Development and initial validation

Eur J Med Genet. 2021 Dec;64(12):104375. doi: 10.1016/j.ejmg.2021.104375. Epub 2021 Nov 3.

Abstract

Monitoring the quality of genetic counselling is essential to ensure appropriate provision. This study describes the development and initial psychometric validation of a novel scale for genetic counselling quality evaluation by patients. A deductive approach was taken to formulate scale items. Exploratory factor analysis with the principal axis factoring method was used to assess the scale's factor structure (n = 118). Internal consistency (Cronbach's Alpha) was also examined. Exploratory factor analysis resulted in a single overarching construct consisting of seven factors, which account for 59% of the variance explained. Items showed, in general, strong factor loadings (>0.5). Some items focused on patient satisfaction with services provision did not load onto the factors. Thus, another factor analysis was performed with these items, which resulted in one-factor. The identified factor accounted for 57% of variance explained, and communalities were strong (≥0.5) for most items. Cronbach's alpha score for the scale was 0.85, indicating high internal consistency. Factors were significantly and moderately interrelated (from r = 0.31 to r = 0.71). Further studies are needed to establish the psychometric validity of the scale.

Keywords: Genetic counselling; Genetics services; Healthcare quality assessment; Patient participation; Psychometric validation.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Factor Analysis, Statistical
  • Female
  • Genetic Counseling / standards*
  • Humans
  • Male
  • Middle Aged
  • Reproducibility of Results
  • Young Adult