Get up, stand up: Alongside adolescents and young adults with cancer for their right to be forgotten

Paola Quarello; Angela Toss; Maurizio Mascarin; Giuseppe Luigi Banna; Marta Canesi; Giuseppe Maria Milano; Lorena Incorvaia; Matteo Lambertini; Monica Terenziani; Carlo Alfredo Clerici; Giulio Enea Vigevani; Giordano Domenico Beretta; Arcangelo Prete; Saverio Cinieri; Fedro Alessandro Peccatori; Andrea Ferrari

doi:10.1177/03008916221101652

Get up, stand up: Alongside adolescents and young adults with cancer for their right to be forgotten

Tumori. 2022 Oct;108(5):402-406. doi: 10.1177/03008916221101652. Epub 2022 Jun 8.

Authors

Paola Quarello^{1

2}, Angela Toss³, Maurizio Mascarin⁴, Giuseppe Luigi Banna⁵, Marta Canesi⁶, Giuseppe Maria Milano⁷, Lorena Incorvaia⁸, Matteo Lambertini^{9

10}, Monica Terenziani¹¹, Carlo Alfredo Clerici^{11

12}, Giulio Enea Vigevani¹³, Giordano Domenico Beretta¹⁴, Arcangelo Prete¹⁵, Saverio Cinieri¹⁶, Fedro Alessandro Peccatori¹⁷, Andrea Ferrari¹¹

Affiliations

¹ Pediatric Onco-Hematology, Stem Cell Transplantation and Cellular Therapy Division, Regina Margherita Children's Hospital, Azienda Ospedaliera-Universitaria Città della Salute e della Scienza, Torino, Italy.
² University of Torino, Torino, Italy.
³ Department of Oncology and Hematology, Azienda Ospedaliero-Universitaria di Modena, Moderna, Italy.
⁴ AYA and Pediatric Radiotherapy Unit, Centro di Riferimento Oncologico, Aviano, Italy.
⁵ Interdisciplinary Group for Translational Research and Clinical Trials, Candiolo Cancer Institute, FPO-IRCCS, Candiolo, Torino, Italy.
⁶ Department of Pediatrics, University of Milano-Bicocca, Fondazione MBBM/ASST-Monza, Monza, Italy.
⁷ Hematology/Oncology, Ospedale Pediatrico Bambino Gesù IRCCS, Roma, Italy.
⁸ Department of Surgical, Oncological and Oral Sciences Section of Medical Oncology University of Palermo, Palermo, Italy.
⁹ Department of Internal Medicine and Medical Specialties (DiMI), School of Medicine, University of Genova, Genova, Italy.
¹⁰ Departament of Medical Oncology, U.O. Clinica di Oncologia Medica, IRCCS Ospedale Policlinico San Martino, Genova, Italy.
¹¹ Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milano, Italy.
¹² Department of Oncology and Hemato-oncology, University of Milano, Milano, Italy.
¹³ School of Law, University of Milano-Bicocca, Milano, Italy.
¹⁴ Department of Oncology, Humanitas Gavazzeni, Bergamo, Italy.
¹⁵ Hematology-Oncology Unit, Department of Pediatrics - IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy.
¹⁶ Medical Oncology Unit and Breast Unit, Ospedale Perrino ASL Brindisi, Brindisi, Italy.
¹⁷ Gynecologic Oncology Department, European Institute of Oncology IRCCS, Milano, Italy.

PMID: 35674140
DOI: 10.1177/03008916221101652

Abstract

Adolescent and young adult cancer survivors may experience various forms of social difficulties years or even decades after completing their cancer treatments. This article will hopefully help the Italian national project dedicated to adolescents and young adults with cancer promoting political and legal solutions to stop discrimination and supporting the right to be forgotten.

Keywords: AYA; Adolescents; Italy; right to be forgotten; survivors; young adults.

Publication types

Editorial

MeSH terms

Adolescent
Cancer Survivors*
Humans
Italy / epidemiology
Neoplasms* / therapy
Young Adult