Classical homocystinuria presenting with transient basal ganglia pathology and dystonia

J Inherit Metab Dis. 2023 Nov;46(6):1206-1208. doi: 10.1002/jimd.12680. Epub 2023 Oct 1.

Abstract

Classical homocystinuria is caused by pathogenic variants in the CBS gene leading to a deficiency of the vitamin B6-dependent enzyme cystathionine beta synthase. The disease is typically associated with high blood homocysteine concentrations. Clinical features include developmental delay/intellectual disability, psychiatric problems, thromboembolism, lens dislocation, and marfanoid habitus. We report on a child with classical homocystinuria presenting with acute episodes of dystonia and symmetrical basal ganglia abnormalities mimicking a mitochondrial disease. After starting treatment with vitamin B6, homocysteine levels rapidly normalized and dystonic episodes did not re-occur. Moreover, brain-imaging findings almost completely disappeared. The case illustrates that homocystinuria should be considered as a treatable differential diagnosis of dystonia.

Keywords: basal ganglia; central tegmental tract; corpus callosum; dystonia; vitamin B6.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Child
  • Cystathionine beta-Synthase
  • Dystonia* / diagnosis
  • Dystonia* / etiology
  • Dystonic Disorders*
  • Homocysteine
  • Homocystinuria* / complications
  • Homocystinuria* / diagnosis
  • Homocystinuria* / genetics
  • Humans
  • Pyridoxine / therapeutic use
  • Vitamin B 6 / therapeutic use

Substances

  • Cystathionine beta-Synthase
  • Pyridoxine
  • Vitamin B 6
  • Homocysteine