What are the priorities for research of older people living in their own home, including those living with frailty? A systematic review and content analysis of studies reporting older people's priorities and unmet needs

Age Ageing. 2024 Jan 2;53(1):afad232. doi: 10.1093/ageing/afad232.

Abstract

Background: There is limited evidence regarding the needs of older people, including those living with frailty, to inform research priority setting.

Objectives: This systematic review aimed to identify the range of research priorities of community-dwelling older people living in their own home, including those living with frailty.

Methods: Included studies were from economically developed countries and designed to identify the priorities for research or unmet needs of community-dwelling older people. Studies were excluded if they described priorities relating to specific health conditions. Medline, Embase, PsycInfo and CINAHL were searched (January 2010-June 2022), alongside grey literature. Study quality was assessed, but studies were not excluded on the basis of quality. A bespoke data extraction form was used and content analysis undertaken to synthesise findings.

Results: Seventy-five reports were included. Seven explicitly aimed to identify the priorities or unmet needs of frail older people; 68 did not specify frailty as a characteristic. Study designs varied, including priority setting exercises, surveys, interviews, focus groups and literature reviews. Identified priorities and unmet needs were organised into themes: prevention and management, improving health and care service provision, improving daily life, meeting carers' needs and planning ahead.

Discussion: Many priority areas were raised by older people, carers and health/care professionals, but few were identified explicitly by/for frail older people. An overarching need was identified for tailored, collaborative provision of care and support.

Conclusion: Review findings provide a valuable resource for researchers and health/care staff wishing to focus their research or service provision on areas of importance for older people.

Keywords: frailty; older people; research priorities; unmet needs.

Publication types

  • Systematic Review
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Caregivers
  • Focus Groups
  • Frail Elderly
  • Frailty* / diagnosis
  • Frailty* / therapy
  • Humans
  • Independent Living