Workforce perspective on racial and ethnic equity in early childhood autism evaluation and treatment: "The cornerstone of everything we do"

Autism. 2024 Oct;28(10):2598-2611. doi: 10.1177/13623613241235522. Epub 2024 Mar 13.

Abstract

Black and non-White Latinx children tend to receive autism diagnoses later in life and with a higher degree of impairment than White children. The purpose of this study was to learn what is currently helping as well as preventing Black and non-White Latinx children from getting access to autism evaluation and services. We held virtual interviews with 26 experts who work with autistic children and their families, including clinical providers, researchers, advocates, and policymakers/government representatives. From these interviews, we identified four themes that have an impact on equity in autism services: (1) who makes up the workforce, (2) workforce capacity and accessibility, (3) workforce payment structure, and (4) changes due to the COVID-19 pandemic. These findings show the need for improved workforce diversity, autism-specific education, payment structures, and additional support for workforce members to avoid burnout. To make childhood autism services more equitable, diversity in recruitment across training levels, cultural awareness, increased autism education for all pediatric providers, and partnerships with caregivers as experts must be prioritized. These investments in the autism workforce will allow professionals in the field to better meet the needs of children and families from Black and non-White Latinx communities and achieve equity in early childhood autism services.

Keywords: autism spectrum disorders; ethnic equity; policy; pre-school children; professional development; qualitative research; racial equity; workforce.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Autistic Disorder* / ethnology
  • Autistic Disorder* / therapy
  • Black or African American
  • COVID-19*
  • Child
  • Child, Preschool
  • Female
  • Health Services Accessibility*
  • Health Workforce
  • Healthcare Disparities* / ethnology
  • Hispanic or Latino*
  • Humans
  • United States