A Multidisciplinary Approach Improves Sexual Health Care for Youth with Duchenne Muscular Dystrophy

J Pediatr. 2024 Aug:271:114079. doi: 10.1016/j.jpeds.2024.114079. Epub 2024 Apr 29.

Abstract

We sought to determine the prevalence of sexual health counseling in patients with Duchenne muscular dystrophy in a single-institution setting. Keywords related to sexual health and development concerns were documented at least once for 75% of patients across the duration of their care. Integration of sexual health discussions was facilitated by comprehensive multidisciplinary support, particularly with the inclusion of specialists in endocrinology and adolescent medicine.

MeSH terms

  • Adolescent
  • Child
  • Counseling
  • Humans
  • Male
  • Muscular Dystrophy, Duchenne* / therapy
  • Patient Care Team*
  • Sexual Health*