HIV and vicarious stigma in a cohort of people living with HIV in Italy: What happens when the stigma is fueled by healthcare providers?

AIDS Care. 2024 Oct;36(10):1441-1451. doi: 10.1080/09540121.2024.2361820. Epub 2024 Jun 4.

Abstract

Vicarious stigma shows how indirect stigmatizing experiences can lead people living with HIV (PLWH) to feel discriminated against. We enrolled 350 PLWH, who were administered a 17-item questionnaire to investigate a subjective experience of stigma experienced in the hospital care setting. We found that at least once 215 PLWH (61.4%) did not want the HIV exemption indicated on the prescription for a specialist medical visit, 232 PLWH (66.3%) never used their HIV-related exemption to make a specialist medical visit, 230 PLWH (65.7%) avoided undergoing a medical assessment outside the infectious disease clinics and 241 patients (68.9%) felt unwelcome during a specialist medical visit. Moreover, 241 patients (61.1%) had heard at least once stories of health workers who did not want to touch PLWH, 213 patients (60.9%) had heard stories at least once of PLWH who had been mistreated by hospital staff, 180 patients (51.4%) had at least once heard stories about PLWH being refused treatment and services and 257 patients (73.4%) had at least once heard stories about health workers talking publicly about PLWH. This is a little explored area, especially regarding the vicarious stigma faced by PLWH. Our findings indicate the importance of combating HIV-related stigma for the wellbeing of PLWH.

Keywords: HIV; SDG 3: Good health and well-being; felt normative stigma; health outcomes; stigma; vicarious stigma.

MeSH terms

  • Adult
  • Attitude of Health Personnel
  • Cohort Studies
  • Female
  • HIV Infections* / psychology
  • Health Personnel* / psychology
  • Humans
  • Italy
  • Male
  • Middle Aged
  • Social Stigma*
  • Stereotyping
  • Surveys and Questionnaires