Patient education for individuals with Interstitial Lung Disease: A scoping review

F1000Res. 2024 Apr 26:13:405. doi: 10.12688/f1000research.147340.1. eCollection 2024.

Abstract

Objectives: Interstitial Lung Disease (ILD) is a severe and rapidly progressing disease with a high fatality rate. Patient education (PE) has been demonstrated to promote long-term adherence to exercise and lifestyle improvements by assisting patients in developing self-management techniques. Our scoping review's goal was to chart out the prevailing level of research about the content, processes, and effectiveness of PE for patients with ILD.

Methods: The relevant databases were searched using the rules provided by Arksey and O'Malley in 2005 and the Joanna Briggs Institute reviewers' manual 2015: an approach for JBI scoping reviews. Individuals with ILD, published in English between the years of inception and 2020, and describing PE administered by various healthcare practitioners were among the 355 studies found and reviewed. Thirteen studies met these criteria.

Results: PE delivery process, delivery techniques, quality of life assessments, common PE themes, and healthcare professional participation were all recognized and cataloged.

Conclusion: Despite the fact that healthcare professionals (physicians, nurses, and physiotherapists) provide PE to patients with ILD regularly, the PE provided varies greatly (contents of PE, process of delivery and delivery techniques). During the scoping review, a significant variation in the themes was addressed. They could not provide any evidence-based specific recommendations for all healthcare practitioners due to the studies' heterogeneity and lack of effectiveness measures.

Keywords: educational contents; effectiveness; interstitial lung disease; patient education; process of delivery; pulmonary rehabilitation; scoping review.

Publication types

  • Review
  • Systematic Review

MeSH terms

  • Humans
  • Lung Diseases, Interstitial* / therapy
  • Patient Education as Topic*
  • Quality of Life

Grants and funding

The author(s) declared that no grants were involved in supporting this work.